Day 4: family time

We took the day off from appointments. Annabelle is so anxious and upset, she won't eat, she is melting down every 15 seconds. Her behavior is deplorable but I can't be mad at her at all.. Regardless its making the trip difficult. We go to a restaurant to eat, she melts down for lunch, we order her food and she melts down that she doesn't want to eat and would rather I use her Tubey (feeding tube & backpack) to feed her instead. If you know Annabelle, this is NOT her. She despises you accessing her tube and now she won't eat orally and only wants her tube. 

We took the day off to get our family back on track and allow the girls to enjoy Cincinnati a bit. I needed some time out of a hospital to assess Annabelle, I don't know if she's hurting, confused or what is going on. I just needed to see my daughter smile and play. Yesterday is just what we needed. 

We visited the Cincinnati Aquarium and the girls loved it.... For 15m and then Annabelle pleaded to leave. We pushed thru and were able to spend a couple hours in the aquarium, maybe we can visit again before we leave. 

It was a rainy day in OH so we decided to catch a movie also! Of course, my girls cannot choose the same movie. Madelynne has had her heart set on seeing Goosebumps for months. Annabelle wanted to see the peanuts movie so we split - AK took Annabelle to see Peanuts and I took Mady to goosebumps (there's a good chance u was more scared than she was!) 

Annabelle was awful in the movie according to AK. She's so antsy and nervous. She can't sit still and doesn't trust her surroundings anywhere. 

After the movie we googled which restaurants were within walking distance and we found Dicks Last Resort. Oh boy, this was the ticket to distracting our little family! The girls were HORRIFIED at the way adults were acting. Our waiter threw napkins at us and Madys eyes nearly burst out her head. They made the night so entertaining for all the kids in the restaurant. The girls did a scavenger hunt thru the restaurant. Belle ordered chicken and wanted both French fries AND tater tots. I bought both. Guess what she ate? Nothing. 

Everyone slept like a rock and we spent the morning doing crafts in the too while AK and I did a load of laundry so we won't be drowning when we get home Saturday. 

This morning we see Dr. Putnam and the team to receive the biopsy results from Pathology (fingers crossed they're in) and hopefully come up with a favorable game plan. Fingers crossed and floods of prayers the biopsys are clean and we can get a new exciting food for the holidays. How amazing would that be?!