Quick update

Things aren't moving very well. Annabelle is still unhappy and having more sad days than happy days. She is mad daily. This escalates when she is hurting, which is still daily. I do believe the new medications are helping her stay asleep at night although I don't think it's helping the pain as much as we hoped it would. She wakes groggy in the morning from the medication and by noon is complaining of pain again. 

Her lower GI is still not functioning any better. We still battle moving her stool on a regular basis and still supplement meds for that as needed.

I've been in communication with Cincinnati Children's as labs and tests continue to come back in.. Her metabolic levels appear to be within normal range (first time in three years). We will continue to repeat tests but based off these results, the chances of her having an Inborn Error of Metabolism is looking less likely (happy dance). We are still exploring an official diagnosis of Mitochondrial Disease (very sad dance).

The team is asking we return to ohio in October/November for the next round of surgery and tests.. I feel like we just got home and our next trip is right around the corner. Oh Annabelle is going to be so heart broken. 

One thing though is for sure. Answers for Annabelle has made the biggest impact on both our and Annabelle's life. She talks about it all the time. She mentions all the friends that came out to see her. She asks for her motorcycle friends on a daily basis. In fact, she's requesting a motorcycle birthday party! :)

We scroll thru the pictures often and talk about the event. She loves it when I wear my tshirt and tell her all about how much fun I had that day. (Which btw, we have a ton of tshirts and bracelets left over for a discounted price. Email me and let me know how many you would like a.bishop08@hotmail.com ) 

I am working on a post from Answers for Annabelle and will share some of our favorite pictures soon :)

Keep the prayers strong!