Slowly losing energy

Our sweet little girl isn't feel so well lately. I wish the weather would hurry and change so that she could go outside for some fresh air and run and play! I believe it will do us all some good.

Annabelle is so smart. She's verbal about what she wants and needs, and she questions everything. Age 3.5 is fascinating for any child, but it's so special for us to watch our little girl learn and grow in her own unique way with this disease. She questions most all foods or meals, and while her nurse and I make most decisions on what is permitted in her diet, Annabelle will always ask one of us "Does my DADDY know you are giving me that?!" she is hilarious.

Her appetite has been depleting lately. She isn't hungry much at all, and even her favorite foods find themselves left at the table and throw away more than they're enjoyed by Annabelle. She told me the other night while crying, "Mommy the food is stuck.. the chicken is stuck in my froat" (froat = throat). Eosinophilic Esophaghitis destroys their GI system and esophagus. Most times in adults, food impaction is one of the first ways they gain their diagnosis. Annabelle's biopsys just two months ago were grim and indicated the disease had relapsed, we are praying that whatever she is telling us is not true. If the food is honestly getting stuck while traveling down her esophagus, than we have a bigger battle ahead with this disease. I give her some water and tell her to swallow hard until it feels better. Her breathing is steady and she doesn't appear to be in any distress, but the complaints are not ending.

Another angle is the lower part of her GI. I know i've mentioned this numerous times, but her BMs are just getting worse and worse. This past week alone she's needed three enema's to allow her body to pass stool. She absolutely cannot pass stool without assistance anymore. The pain is excruciating and traumatic. My biggest frustration is that I don't understand why this continues to happen! She gets so much water and fluids, her diet is better than it's ever been but the issue continues to get worse. She takes medication daily to help with this issue... I pray our doctors will explore this soon to help our sweet little girl.

While we're on a kick with bad news. She's also developed a cold. It began as a cough and has quickly escalated to fevers and a deeper cough. While it only began two days ago, it's progressed so quickly that our doctor wants her seen right away. Fingers are crossed she is ok... she's so weak and exhausted. From the enema's, to her poor appetite and the persistent coughing, Annabelle's little body needs a break!