Stabilizing Annabelle is our current struggle. She has a fair appetite since being home from the hospital but she continues to have bouts of retching (trying to vomit). She does not complain of pain but she's visibly uncomfortable. She struggles most after a feeding and then begins to feel better shortly after her stomach is emptied.
Mid-week we began to worry about Annabelle's BMs. After three days from being home from the hospital, Annabelle already wasn't passing stool again. She is taking all the standard stool softner and oral laxatives daily, by day 4 we added milk of magnesia into her diet and that did the trick. She had several BMs over the weekend which came as a huge relief to us. We do not have any true plan as to how we will control or maintain a healthy GI digestion and keep things moving. Some part of her GI system is no longer functioning - we just need to get to Cincinnati and get our answers to hopefully determine the best game plan and treatment for Annabelle. In the meantime, our prayers are held strong that we can safely maintain Annabelle's digestion and keep things 'moving'.
Goals for this week are to improve her diet. If she misses or is late for feedings, she becomes critically weak, pale and disoriented. With feeds she becomes nauseated and uncomfortable. Hopefully we can find a safe balance soon.
Thank you from the bottom of our hearts for the continued prayers for our baby girl!
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