Tuesday, May 12, 2015

Quick Update on Annabelle

Unfortunately, our family continues to get hit with a GI bug that is circulating the county. It's a nasty bug, and one that will quickly land Annabelle in a hospital if she comes down with it. Kudos to our family, our nurse and Annabelle - we have somehow managed to prevent Belle from coming down with it. Between quarantine, gallons of lysol, hand washing and isolation - she is doing very well.

One change in Annabelle's condition, is more pain/discomfort. If you've ever met this strong little girl, you will recognize almost immediately "she does not complain of ANYTHING". Annabelle can run 100mph into a wall, fall down and bounce back up "Im fine!" with a smile. The doctors are not certain whether she does not feel pain, or her poor body is so used to constant pain that she doesn't recognize when she's hurt. Lately however, she is complaining more and more often that her tummy hurts. This typically happens after she has either drank a cup of her formula or has received a tube feeding. Her whimpering is not accompanied with tears, she just seems to lay down and not move for quite some time until the pain subsides. I am not certain what is causing the discomfort. I hope we can find resolution to this next month - I pray it doesn't escalate between now and then!

Her joints and muscles are also becoming more and more weak. She pushes herself really hard to play and keep up with others. When her friends are over to play or when she's around her cousins, she gives it her all... and we certainly let her run! However, she will spend the next day(s) barely able to walk down stairs without crying for help. She wants to be carried a lot more often - because Annabelle does not communicate what hurts her, I don't know if she wants to be carried more because her legs / joints are in pain or if she's too tired / fatigued, or if it's her tummy that is bothering her. To ask these questions is like speaking to a fish. She will smile a goofy smile and say "I ok mama! I not sick! :) " I love her spirit and optimism, I wouldn't dare crush that for anything. We just carry her along and continue moving about our day.


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