Monday, March 17, 2014

Mama's daydreaming for an escape..

Our family is in limbo right now. We're all being stretched in different angles with little solid ground beneath us. There is one thing we all have in common though, we all hate it.


The girls are working thru the adjustment of moving from the only ounce of normalcy they've ever had, their home. They're again sharing a room in a temporary bedroom with 1/10th of their toys/belongings. We have new rules, new schedules and adjustments. Annabelle is struggling thru even more adjustments, not to include the newest complete change in her diet. And poor Madelynne is 4 days shy of her 5th Birthday and battling a fever of 103/104 that won't go away. Our life is upside down.

What do you want to do when life is upside down.. with no end in sight? Well, for me, I want to run. Run to vacation! And that's exactly where my mind continues to drift during this chaotic time in our lives. Five months ago our life was in a ... hmm.... different kind of chaos(?) That was the time Annabelle was her worst. We had just switched her off Elecare and watched some of her very darkest days. AK and I kept Madelynne at school entirely too much - but with good reasoning, to shield her from the nightmare unfolding in our home. Once we began the new formula, our family began to emerge from the clouds. The light began to shine... and we followed that light, all the way to the Sunshine State! I asked all our doctors repeatedly, "do you think it's safe to leave.. I'm worried about Annabelle".. they all smiled and said "Whats the worst that could happen Ashley? She get sick and need a hospital? Or whats the best that could happen? She thrive, live, laugh and play in the sunshine? GO!" That's exactly what we did.





Our family exhaled, in the comfort of the home with some of the best friends that have been part of our lives for so long. Kristy and Matt, with their two beautiful blue eyed baby girls, Charlotte and Adele. We parked our family on their patio and couch, poured a glass of wine and watched all our babies (4 girls to be exact) play, laugh, LIVE and all fall in love with one another. That is the break in life that you need sometimes. When everything feels like it's moving in the wrong direction, nothing is going ok - sometimes you just long for that escape... and boy do I wish we could cash it in again!! We close our eyes..  back to Florida, Sunshine and Disney World we go....









Not all days were great, I didn't promise that. 
But a crummy day walking by the ocean is still better than a day in the gloomy 4 walls of home that we've been trapped in. 




Dance with me sissy... Let's twirl !!
 




My heart sank and melted as we experienced how much pouring LOVE Disney flooded Annabelle and our family when we met the characters. I would have never asked for an ounce of individual attention, but before I could recognize what was happening, the cast promptly paused the line for viewing characters. They escorted us separately aside to allow our family time with everyone together for far longer than I could have imagined. Madelynne and Charlotte thoroughly enjoyed the time playing games with characters.. Annabelle wasn't feeling well but she was over the moon happy to finally meet Mickey and Minnie. Mickey was the most intrgued, passionate and loving person. He/(she?) wouldn't stop flooding Annabelle with kisses and warm hugs..



 





 Until we see the next break in the clouds, the light ahead and the breath of fresh air.. we will close our eyes and drift to that happy place. My happy place is seeing huge smiles across my girls faces, watching them love, live, laugh, giggle, run, play and smile. 

We need sunshine and medical miracles in our lives.. I close my eyes to take me there.. I pray it's nearing the horizon..
 


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