Thursday, April 9, 2015

Holding our breath


Were holding our breath and just waiting.. We're praying that we can keep Annabellr stable and make her as comfortable as we can until we get her into our promise land.. Aka specialty hospital. 

I know this topic is becoming so tiresome, trust me, it is for us too.. Her bowels are in terrible shape. This past week she went 7 days without a BM even while taking floods of medications, milk of magnesia, chewable laxatives and fleet enemas. Nothing works. Tuesday night became a marathon of excruciating pain for Annabelle. I am shocked you couldn't hear her screams from your house as she finally started passing stool along with floods of blood from tearing so badly. The trauma lasted two hours and each time she passed even the tinest amount, the pain would take her breath away as fast as she jumped and screamed. She was so exhausted.. I was exhausted with her and didn't know what to do to help. She begged me for hours to help her, she pleases me to make it all stop and all I could do was watch her struggle. 

I've spoken with our doctor this week and her best guess is that we're looking at either Chron's or ulcerative colitis. We both prefer to have the specialist make these decisions when they perform her tests and biopsys there.. We just don't know how long it's going to take to get admitted :(

The seasonal allergies are kicking her butt. I am almost certain it's set off her eoe but there's no way to confirm that guess. She's coughing badly, choking on everything and tells me the booboo's in her tummy make the food get stuck. I don't know what that translates to for a 3yo but it sure makes us nervous.

Her energy levels are about the same. She tires quickly if she runs around.. She's powerless against the cold or fluctuating temperatures. Her appetite is also depleting dangerously- this is a direct reflection to the constipation. 






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